The film is based on the true story of John Crowley, a man who fought the system to pursue a cure for his child’s life threatening disease. Two of his kids were suffering from Pompe Disease... a disease with no cure.
I never know what a Pompe disease is until I have seen the movie. What is Pompe Disease? Pompe disease is an inherited disorder caused by the buildup of a complex sugar called glycogen in the body's cells. The accumulation of glycogen in certain organs and tissues, especially muscles, impairs their ability to function normally.
The movie is all about extra ordinary measures a parent has to do for their kids. Watching this movie makes me feel more blessed having a healthy child. I can't help but feel the pain the parents are experiencing having to watch their children deteriorate. As a mother myself, I know how painful it is to see your kids suffer. I really admire the Crowleys for all their efforts and sacrifices.
1 comments:
mao ni inyo gi tan aw gahapon lulu? mura bitaw ni ug nice ky kita ko sa commercial.
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